Virtual Support Groups
Have a question you need advice on? Want to meet other patients and care partners? Join us for our bi-annual Support Groups! All meetings are held via Zoom at 7pm EST/6pm CST. Our support groups are an open discussion and forum for anything you want to talk about. We're looking forward to seeing you there!
Private Facebook Group
Connect with ALSP patients and care partners from around the world along with Sisters’ Hope Foundation staff!
Asymptomatic Carriers
We hold bi-annual virtual support groups for asymptomatic carriers of the CSF1R mutation, BANDDOS, AARS1/AARS2 mutations which cause ALSP. More information can be found on the Events tab.