Virtual Support Groups

Have a question you need advice on? Want to meet other patients and care partners? Join us for our virtual monthly Support Groups! All meetings are held via Zoom at 7pm EST/6pm CST. Our support groups are an open discussion and forum for anything you want to talk about. We're looking forward to seeing you there!

Join Virtual Support Group

Private Facebook Group

Connect with ALSP patients and care partners from around the world along with Sisters’ Hope Foundation staff!

Join Facebook Group

Asymptomatic Carriers

We hold monthly virtual support groups for asymptomatic carriers of the CSF1R mutation, BANDDOS, AARS1/AARS2 mutations which cause ALSP. More information can be found on the Events tab.

Join Asymptomatic Carriers Support Group