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EL-PFDD Informational Webinar

  • Live! Casino & Event Center 900 Packer Avenue Philadelphia, PA, 19148 United States (map)

Sisters' Hope Foundation will be hosting an externally-led patient focused drug development (EL-PFDD) informational webinar on Monday, April 28th, 2025 via Zoom. We encourage anyone attending the PFDD or considering attending the PFDD to watch this webinar.

Topics covered will include:

  1. Role of the FDA

  2. Purpose of EL-PFDD

  3. Details about ALSP specific EL-PFDD

  4. Next Steps - Voice of the Patient

  5. How You Can Participate

  6. Registration Information

    This session will be prerecorded and available to view on our website if you are not able to attend the webinar on 4/28. Register at the link below to receive the Zoom link for the Webinar.
    Register here!

    Date: Monday, April 28th, 2025
    Time: 12pm CST
    Venue: Virtually via Zoom

    Please contact Erin Sullivan at info@sistershopefoundation.org with any questions.

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April 25

Virtual Support Group April

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April 28

Asymptomatic Carrier Support Group