May is ALSP Awareness Month 💜

ALSP is caused by mutations in the CSF1R gene, located at 5q32 — which is why we recognize this disease in the 5th month.

But this month is about more than awareness.
It’s about:
💜 Supporting families navigating the unimaginable
💜 Raising awareness so ALSP is seen and understood
🧬 Driving research toward a CURE

This Awareness Month, we’ll focus on Movement. With no FDA-approved treatment options we need to continue to support our loved ones through this journey. Quality of Life Matters. Movement Matters in brain health.

👉 Take action today:
Follow, share, and help us reach more families.

If you’re able, donate to support, raise awareness and find a Cure for ALSP.

Because families affected by ALSP don’t have time to wait.

#ALSPAwareness #CureALSP #MovementMatters #BrainHealth #RareDisease #HopeInAction